helpful resources

These organizations offer assistance with the issues faced by many elders, their caregivers and their families:

AARP (formerly known as the American Association of Retired Persons) is a nonprofit membership organization dedicated to addressing the needs and interests of persons 50 years and older. Through information and education, advocacy and service, they seek to enhance the quality of life for all by promoting independence, dignity, and purpose.

Administration on Aging Information on Older Persons and Services for the Elderly
Administration on Aging (AoA) “Elder Page” site contains many resources for the elderly that can be useful for attorneys as well. There is a large nationwide searchable directory of 230 national and local agencies, health associations, and organizations. There is a large compilation of general and statistical materials on-line.

ALS Foundation
The ALS Association symbolizes the hopes of people everywhere that Amyotrophic Lateral Sclerosis will one day be a disease of the past - relegated to historical status, studied in medical textbooks, conquered by the dedication of thousands who have worked ceaselessly to understand and eradicate this perplexing killer.

Alzheimer’s Association
The Alzheimer’s Association is the largest national voluntary health organization dedicated to funding research into the causes, treatments, prevention, and cure of Alzheimer’s disease and to providing support to the four million Americans with the disease, their families, and caregivers.

American Cancer Society
The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.  Their website contains valuable resources including prevention and risk factors, treatment methods, detection guidelines, and patient services that help cancer patients and their families.

American Society on Aging
The American Society on Aging’s (ASA) members comprise of the largest multidisciplinary national community of professionals working with and on behalf of older people.  The membership includes representatives of the public and private sectors, service providers, researchers, educators, advocates, health, allied health, social service, managed care and long-term care and mental health professionals, students and the retired, policy makers and planners. For over 40 years, the American Society on Aging has been an active and effective resource for professional in aging and aging-related fields who want to enhance their ability to promote the well-being of aging people and their families.

American Stroke Association
The AHA/ASA is the nation’s oldest and largest voluntary organization dedicated to fighting heart disease and stroke.To improve the lives of all Americans, we provide public health education in a variety of ways. We’re the nation’s leader in CPR education training. We help people understand the importance of healthy lifestyle choices. We provide science-based treatment guidelines to healthcare professionals to help them provide quality care to their patients. We educate lawmakers, policymakers and the public as we advocate for changes to protect and improve the health of our communities

Arthritis Foundation
The Arthritis Foundation is the Champion of Yes. Leading the fight for the arthritis community, the Arthritis Foundation helps conquer everyday battles through life-changing information and resources, access to optimal care, advancements in science and community connections. Our goal is to chart a winning course, guiding families in developing personalized plans for living a full life – and making each day another stride towards a cure. We also publish Arthritis Today, the award-winning magazine that reaches 4.2 million readers is a federal government website managed by the U.S. Centers for Medicare and Medicaid Services (CMS) and is the official website for the Health Insurance Marketplace. Visit to learn more about the new health care law, benefits, and how to choose the right health insurance plan.

Honoring Choices
Honoring Choices Massachusetts is a highly collaborative initiative of dedicated individuals, groups and organizations who generously contribute their expertise and support to strengthen our shared mission. We recognize the leadership and expertise of our Collaborating Members, listed below. We share a simple yet powerful acknowledgment that “we stand behind your mission and you stand behind ours”, and that together we can improve access to information and high quality person-centered care for all Massachusetts residents.

Lewey Body Dementia
The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting people with LBD, their families and caregivers and promoting scientific advances. The Association's purposes are charitable, educational, and scientific.

The federal government’s Medicare website includes specifics about Medicare, nursing home information and comparisons, and links to evaluate Medicare D prescription insurance options.
1.800.633.4227; TTY/TDD 1.877.486.2048.

Medicare Rights Center
Medicare Rights Center (MRC) is the largest independent source of health care information and assistance in the United States for people with Medicare.  Founded in 1989, MRC helps older adults and people with disabilities get good, affordable health care.  MRC’s website contains information about Medicare benefits, options and changes, examples of interesting cases we have dealt with, and resources for getting involved in our consumer advocacy work. The site also contains updated information for consumers about the upcoming changes in Medicare and how those will affect their health coverage.

Mesothelioma + Asbestos Awareness Center
This informative online resource assists mesothelioma patients and caretakers in learning more about mesothelioma cancer. Providing the best assistance, the Mesothelioma + Asbestos Awareness Center is a great source to locate doctors and cancer clinics that specifically treat this cancer. You can find all types of information regarding the different types, stages, diagnosis, prognosis, treatment options, and patient support. For additional information, please take a look at our guide and see if you'd like to receive a free packet with educational information that will assist you on your journey.

National Academy of Elder Law Attorneys
The National Academy of Elder Law Attorneys, Inc., is a nonprofit association which assists lawyers, bar organizations, and others who work with older clients and their families.  Established in 1987, the Academy provides a resource of information, education, networking, and assistance to those who must deal with the many specialized issues involved with legal services to the elderly and disabled.

National Citizens’ Coalition for Nursing Home Reform
The mission of the National Citizens’ Coalition for Nursing Home Reform is to improve the quality of life of residents in the nation’s nursing homes.

National Family Caregivers Association
The National Family Caregivers Association offers services in the areas of information and education, support and validation, and public awareness and advocacy, toward the goal of minimizing the disparity between a caregiver’s quality of life and that of mainstream Americans.

National Guardianship Association
The mission of the National Guardianship Association is to provide educational, training, and networking opportunities for guardians; to promote the highest levels of values, standards and ethics; and to ensure a nationally recognized standard of excellence.

National Institute of Health
This website shares – in a fast and cost-effective way – consumer health information about many of the diseases or health problems on which NIH conducts or supports research. You can choose from this growing full-text collection of our most requested consumer health publications.

National Parkinson Foundation

National Senior Citizens Law Center
The National Senior Citizens Law Center (NSCLC) advocates nationwide on behalf of low-income elderly individuals and persons with disabilities. It provides litigation assistance, research and consulting support, national policy representation, training and manuals, and periodicals. Substantive areas covered on the site include: age discrimination, Americans with Disabilities Act, Medicaid, Medicare, nursing homes, Older Americans Act, pension rights, and social security. The site includes articles and legal documents on many of these topics.  The Center’s publications, including numerous manuals and a newsletter, are described, but are for sale in print form only.

Social Security Administrations
Social Security was created in 1935 to promote the economic security of the nation's people. Since then, we've integrated programs and services to support millions of people. Get to know your Social Security and learn about our commitment to help secure today and tomorrow.

Stand Up for Health Care
Stand Up for Health Care is a project of Families USA, a national nonprofit, non-partisan organization dedicated to the achievement of high-quality, affordable health care for all Americans. Working at the national, state, and community levels, they have earned a national reputation as an effective voice for health care consumers for 25 years.

Veterans Administration’s Guide to Long Term Care
This website offers information for Veterans and caregivers/support persons about long-term care services and settings, links to helpful websites, decision aids, and personal stories that illustrate how to be involved in shared decisions about long term care. The Shared Decision Making aid is a useful tool in helping veterans, their families, and their support persons to decide how much assistance they need. Readers may also download a Caregiver Assessment form.